Research Reports - Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury

NeuroRehabilitation. 2016 Dec 8. [Epub ahead of print]

Manskow US(1,)(2), Friborg O(3), Røe C(4,)(5), Braine M(6), Damsgard E(2), Anke
A(1,)(7).

OBJECTIVE: To assess burden and life satisfaction in family members of patients
with severe traumatic brain injury (sTBI) at 1 and 2 years post-injury, examine
if change in burden can be predicted by family member and patient demographics,
patient's functional status, family members social network or level of burden at
1 year.
METHODS: Prospective national multicenter study. Self-report from family members,
patient data collected from a national cohort study on patients with sTBI. 80
family members participated.
MAIN OUTCOME MEASURE: The Caregiver Burden Scale (CBS), life satisfaction.
RESULTS: Total burden increased between years 1 and 2 post-injury (P = 0.04).
Thirty percent of the family members reported an increased burden, 55% were
stable, and 15% had a decrease in burden between the two follow-up times.
Logistic regression analyses revealed that experiencing loneliness was an
independent predictor of increased burden from 1 to 2 years post-injury
(OR = 4.35, P < 0.05). Life Satisfaction was lower at the 2 year follow-up than
at 1 year (p = 0.03).
CONCLUSIONS: The results demonstrate a need for long-term follow-up of patients
and family members that focuses on professional support to relieve burden and
risk of loneliness or social isolation. This group may benefit from additional
follow-up interventions tailored to their needs. 

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