Research Reports - Characteristics and concerns of caregivers of adults with traumatic brain injury

J Head Trauma Rehabil. 2016 Mar 28. [Epub ahead of print]

Powell JM(1), Wise EK, Brockway JA, Fraser R, Temkin N, Bell KR.

OBJECTIVE: To describe the characteristics of caregivers of adults with traumatic
brain injury (TBI) and their concerns in the first months after community
discharge of the TBI survivor.
DESIGN: Secondary analysis of data collected during a parallel-group randomized
controlled trial.
SETTING: Community.
PARTICIPANTS: A total of 153 consecutively enrolled caregivers of adults with
moderate to severe TBI discharged to the community following acute and/or
rehabilitation care at a Level I trauma center with 71 caregivers in the
treatment group identifying concerns as part of the intervention procedures.
MAIN MEASURES: Caregiver demographics, caregiver-survivor relationship
characteristics, caregiver activity changes, and concerns targeted by caregivers
for education and problem-solving via biweekly phone calls.
RESULTS: Thirty-nine percent of caregivers were spouses and 35% parents.
Sixty-five percent lived in the same house as the survivor preinjury with 86% in
touch daily to several times per week. Concerns targeted by more than one-third
of caregivers related to managing their emotional adjustment, strategies for
getting things done, managing survivor emotions and behaviors, and engaging in
healthful habits.
CONCLUSIONS: Caregivers of TBI survivors targeted personal concerns relating to
their own emotional adjustment and participation as well as concerns relating to
symptoms and recovery of the TBI survivor to address through education and

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